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	<title>Comments on: I&#8217;m not waiting anymore</title>
	<atom:link href="http://www.knitnut.net/2009/07/im-not-waiting-anymore/feed/" rel="self" type="application/rss+xml" />
	<link>http://www.knitnut.net/2009/07/im-not-waiting-anymore/</link>
	<description>Watch my life unravel...</description>
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		<title>By: meanie</title>
		<link>http://www.knitnut.net/2009/07/im-not-waiting-anymore/#comment-51663</link>
		<dc:creator>meanie</dc:creator>
		<pubDate>Mon, 06 Jul 2009 12:34:20 +0000</pubDate>
		<guid isPermaLink="false">http://www.knitnut.net/?p=1941#comment-51663</guid>
		<description>what Nat said - I know of someone who didn&#039;t even bother with Ottawa and went straight to Smiths Falls with very little wait time.</description>
		<content:encoded><![CDATA[<p>what Nat said &#8211; I know of someone who didn&#8217;t even bother with Ottawa and went straight to Smiths Falls with very little wait time.</p>
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		<title>By: Lo</title>
		<link>http://www.knitnut.net/2009/07/im-not-waiting-anymore/#comment-51658</link>
		<dc:creator>Lo</dc:creator>
		<pubDate>Sun, 05 Jul 2009 22:58:08 +0000</pubDate>
		<guid isPermaLink="false">http://www.knitnut.net/?p=1941#comment-51658</guid>
		<description>what C said up above
if you can get U.S. surgery and get reimbursed that would be good!
Also, Many are jumping queue as I don&#039;t even think the queue is that orderly and again, Ottawa has the worst wait so go elsewhere!</description>
		<content:encoded><![CDATA[<p>what C said up above<br />
if you can get U.S. surgery and get reimbursed that would be good!<br />
Also, Many are jumping queue as I don&#8217;t even think the queue is that orderly and again, Ottawa has the worst wait so go elsewhere!</p>
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		<title>By: Lo</title>
		<link>http://www.knitnut.net/2009/07/im-not-waiting-anymore/#comment-51657</link>
		<dc:creator>Lo</dc:creator>
		<pubDate>Sun, 05 Jul 2009 22:50:35 +0000</pubDate>
		<guid isPermaLink="false">http://www.knitnut.net/?p=1941#comment-51657</guid>
		<description>The system here is more than flawed. As I tell my American friends, we have &#039;free&#039; health care at a cost-a cost of quality of life and in some cases and waits, it costs us our lives. Everyone is giving great info here.
Exaggerate symptoms-you HAVE too
Call people
Show up and Exaggerate 
Try another province...</description>
		<content:encoded><![CDATA[<p>The system here is more than flawed. As I tell my American friends, we have &#8216;free&#8217; health care at a cost-a cost of quality of life and in some cases and waits, it costs us our lives. Everyone is giving great info here.<br />
Exaggerate symptoms-you HAVE too<br />
Call people<br />
Show up and Exaggerate<br />
Try another province&#8230;</p>
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		<title>By: zoom!</title>
		<link>http://www.knitnut.net/2009/07/im-not-waiting-anymore/#comment-51644</link>
		<dc:creator>zoom!</dc:creator>
		<pubDate>Sat, 04 Jul 2009 14:46:56 +0000</pubDate>
		<guid isPermaLink="false">http://www.knitnut.net/?p=1941#comment-51644</guid>
		<description>Thank you very much to all of you for your help. Excellent suggestions. The common thread does seem to be the squeaky wheel angle. 

At this point I&#039;ve written to my MPP and my MP, but haven&#039;t heard back from either of them.

But there has been some small measure of progress. I got a letter from my doctor&#039;s office yesterday. They&#039;ve referred me to a neurosurgeon, who, apparently has accepted the referral. His office will be contacting me to set up an appointment (&quot;Your patience would be appreciated,&quot; the letter says, &quot;as wait times vary.&quot;)

So now I&#039;m waiting to get an appointment with a specific neurosurgeon. I have no idea how long his waiting list is, either for initial appointments or for surgery.

I&#039;ve learned quite a bit about wait times over the past few days. Each doctor has their own wait list. Wait times are calculated, as one commenter pointed out, from the day the specialist deems that you need surgery, until the day you have surgery. In other words, my waiting period hasn&#039;t even started yet, even though I&#039;ve had this problem for almost five months and have been seeing my doctor about it for four months.</description>
		<content:encoded><![CDATA[<p>Thank you very much to all of you for your help. Excellent suggestions. The common thread does seem to be the squeaky wheel angle. </p>
<p>At this point I&#8217;ve written to my MPP and my MP, but haven&#8217;t heard back from either of them.</p>
<p>But there has been some small measure of progress. I got a letter from my doctor&#8217;s office yesterday. They&#8217;ve referred me to a neurosurgeon, who, apparently has accepted the referral. His office will be contacting me to set up an appointment (&#8221;Your patience would be appreciated,&#8221; the letter says, &#8220;as wait times vary.&#8221;)</p>
<p>So now I&#8217;m waiting to get an appointment with a specific neurosurgeon. I have no idea how long his waiting list is, either for initial appointments or for surgery.</p>
<p>I&#8217;ve learned quite a bit about wait times over the past few days. Each doctor has their own wait list. Wait times are calculated, as one commenter pointed out, from the day the specialist deems that you need surgery, until the day you have surgery. In other words, my waiting period hasn&#8217;t even started yet, even though I&#8217;ve had this problem for almost five months and have been seeing my doctor about it for four months.</p>
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		<title>By: XUP</title>
		<link>http://www.knitnut.net/2009/07/im-not-waiting-anymore/#comment-51643</link>
		<dc:creator>XUP</dc:creator>
		<pubDate>Sat, 04 Jul 2009 12:03:57 +0000</pubDate>
		<guid isPermaLink="false">http://www.knitnut.net/?p=1941#comment-51643</guid>
		<description>This is so great - all these suggestions. The common thread is &quot;squeaky wheel&quot;. I know that&#039;s pretty far down on your list of personality traits, so be sure to take the squeakiest wheel you know with you when you go. Meanwhile, if you need it, someone on my blog posted a link to Trillium which is set up to assist people who do not have private insurance to pay for drugs; http://tinyurl.com/nokq4t</description>
		<content:encoded><![CDATA[<p>This is so great &#8211; all these suggestions. The common thread is &#8220;squeaky wheel&#8221;. I know that&#8217;s pretty far down on your list of personality traits, so be sure to take the squeakiest wheel you know with you when you go. Meanwhile, if you need it, someone on my blog posted a link to Trillium which is set up to assist people who do not have private insurance to pay for drugs; <a href="http://tinyurl.com/nokq4t" rel="nofollow">http://tinyurl.com/nokq4t</a></p>
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		<title>By: gayle</title>
		<link>http://www.knitnut.net/2009/07/im-not-waiting-anymore/#comment-51642</link>
		<dc:creator>gayle</dc:creator>
		<pubDate>Sat, 04 Jul 2009 11:57:45 +0000</pubDate>
		<guid isPermaLink="false">http://www.knitnut.net/?p=1941#comment-51642</guid>
		<description>Crawl into the emergency room howling and crying.  Truly.
Get some attention.</description>
		<content:encoded><![CDATA[<p>Crawl into the emergency room howling and crying.  Truly.<br />
Get some attention.</p>
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		<title>By: Nat</title>
		<link>http://www.knitnut.net/2009/07/im-not-waiting-anymore/#comment-51641</link>
		<dc:creator>Nat</dc:creator>
		<pubDate>Fri, 03 Jul 2009 22:56:47 +0000</pubDate>
		<guid isPermaLink="false">http://www.knitnut.net/?p=1941#comment-51641</guid>
		<description>Number of things... 

I&#039;m not sure what kind of doc you need, but Ottawa&#039;s wait times are not good. (In fact , they are consistently the worst in the province.) Certainly asking your oncologist to go to bat for you is a fabulous idea. 

With the emphasis on hips and knees, fewer other surgeries are being done. However, if you don&#039;t need specialized care -- leaving the Ottawa area might get you surgery faster. Check the site, if you go to a 250K you can see some pretty low wait times. (This is also dependent on the complexity of the case -- if this straight forward a smaller  community hospital might be able to handle it.)  Smithsfall and Brockville are close-ish.
http://www.health.gov.on.ca/transformation/wait_times/public/wt_public_mn.html#

Now, the two year wait list does not apply to all orthopods, ask for a bigger list. There is no registry, so call around. Some newer docs can see you much more quickly.  It sounds like your doctor doesn&#039;t know how to navigate the system.  I know former NDP candidate Marlene Rivier used to act as a &quot;health care consultant&quot; and help people navigate the system. (No contact info.) She might have some advice as well.</description>
		<content:encoded><![CDATA[<p>Number of things&#8230; </p>
<p>I&#8217;m not sure what kind of doc you need, but Ottawa&#8217;s wait times are not good. (In fact , they are consistently the worst in the province.) Certainly asking your oncologist to go to bat for you is a fabulous idea. </p>
<p>With the emphasis on hips and knees, fewer other surgeries are being done. However, if you don&#8217;t need specialized care &#8212; leaving the Ottawa area might get you surgery faster. Check the site, if you go to a 250K you can see some pretty low wait times. (This is also dependent on the complexity of the case &#8212; if this straight forward a smaller  community hospital might be able to handle it.)  Smithsfall and Brockville are close-ish.<br />
<a href="http://www.health.gov.on.ca/transformation/wait_times/public/wt_public_mn.html#" rel="nofollow">http://www.health.gov.on.ca/transformation/wait_times/public/wt_public_mn.html#</a></p>
<p>Now, the two year wait list does not apply to all orthopods, ask for a bigger list. There is no registry, so call around. Some newer docs can see you much more quickly.  It sounds like your doctor doesn&#8217;t know how to navigate the system.  I know former NDP candidate Marlene Rivier used to act as a &#8220;health care consultant&#8221; and help people navigate the system. (No contact info.) She might have some advice as well.</p>
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		<title>By: mudmama</title>
		<link>http://www.knitnut.net/2009/07/im-not-waiting-anymore/#comment-51640</link>
		<dc:creator>mudmama</dc:creator>
		<pubDate>Fri, 03 Jul 2009 18:35:03 +0000</pubDate>
		<guid isPermaLink="false">http://www.knitnut.net/?p=1941#comment-51640</guid>
		<description>These things are interrelated - STRESS - emotional stress - has a profound effect on disc issues and on cancer outcomes.

If it wasn&#039;t for the stress of the breast cancer diagnosis and wait for treatment your back might not have gotten this bad so quickly.

If it wasn&#039;t for the back pain and wearing down of your immune system through chronic pain your breast cancer treatment would be easier to get through.</description>
		<content:encoded><![CDATA[<p>These things are interrelated &#8211; STRESS &#8211; emotional stress &#8211; has a profound effect on disc issues and on cancer outcomes.</p>
<p>If it wasn&#8217;t for the stress of the breast cancer diagnosis and wait for treatment your back might not have gotten this bad so quickly.</p>
<p>If it wasn&#8217;t for the back pain and wearing down of your immune system through chronic pain your breast cancer treatment would be easier to get through.</p>
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		<title>By: grace</title>
		<link>http://www.knitnut.net/2009/07/im-not-waiting-anymore/#comment-51639</link>
		<dc:creator>grace</dc:creator>
		<pubDate>Fri, 03 Jul 2009 17:47:10 +0000</pubDate>
		<guid isPermaLink="false">http://www.knitnut.net/?p=1941#comment-51639</guid>
		<description>I think Julia offers great advice. &#039;Compromised cancer tretment&#039; is weighty.

Dr. Aranout is asscociated with the QCH? S&#039;s third hip replacement was done there; it was a complicated affair and done with better than expected results. Though at this point you might go 500 steps in a cat carrier for a chance at surgery.</description>
		<content:encoded><![CDATA[<p>I think Julia offers great advice. &#8216;Compromised cancer tretment&#8217; is weighty.</p>
<p>Dr. Aranout is asscociated with the QCH? S&#8217;s third hip replacement was done there; it was a complicated affair and done with better than expected results. Though at this point you might go 500 steps in a cat carrier for a chance at surgery.</p>
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		<title>By: Julia</title>
		<link>http://www.knitnut.net/2009/07/im-not-waiting-anymore/#comment-51638</link>
		<dc:creator>Julia</dc:creator>
		<pubDate>Fri, 03 Jul 2009 16:54:30 +0000</pubDate>
		<guid isPermaLink="false">http://www.knitnut.net/?p=1941#comment-51638</guid>
		<description>I have been thinking about this since I read the post and felt terrible for you.  I see you have got lots of great advice.  The only thing I can think of is to talk to someone like Dr. Arnaout who is aware of your disc condition and see if your future treatment for the breast cancer will be compromised by the disc thing.  You haven&#039;t got the full pathology back yet but if you have to have more treatment, it might have to be delayed or lessened because of the back thing.  If you can get the back fixed first, then you will be ready for the treatment.  I would use the key words &quot;compromised cancer treatment&quot; to get attention.</description>
		<content:encoded><![CDATA[<p>I have been thinking about this since I read the post and felt terrible for you.  I see you have got lots of great advice.  The only thing I can think of is to talk to someone like Dr. Arnaout who is aware of your disc condition and see if your future treatment for the breast cancer will be compromised by the disc thing.  You haven&#8217;t got the full pathology back yet but if you have to have more treatment, it might have to be delayed or lessened because of the back thing.  If you can get the back fixed first, then you will be ready for the treatment.  I would use the key words &#8220;compromised cancer treatment&#8221; to get attention.</p>
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